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VIC CHAMPION
Jess Cochran (they/them)
LIVED EXPERIENCE
Disability & Multiple Chronic Illnesses
KEY INFORMATION
Place of Birth: Sunbury, VIC, Australia
Current location: Sunbury, Victoria, Australia
Age: 33 years old
Language/s: English only
LGBTQIA+: Yes
NDIS Participant: Yes
Diagnoses: Postural Orthostatic Tachycardia Syndrome, Ehlers-Danlos Syndrome (EDS), Autism, Pituitary Adenoma, Gastroparesis, Fibromyalgia, CFS/ME, Migraines, Depression, Anxiety, C-PTSD, ADHD, PCOS, Dysautonomia, Scoliosis, Endometriosis, Raynaud’s
Healthcare Access: Primary Health Care, Mental Health, Allied Health, Secondary and Tertiary care
BIO
Jess Cochran is a queer, non-binary, disability advocate, talented performing artist, model, writer, public speaker and carer. Jess' health deterioration landed them in the paediatric system, as they faced challenges with their mental and physical health, before they condition worsened in their early-20s. Jess now uses a wheelchair for mobility, portacath for vascular access and a PEGJ for nutrition. Jess also has an Assistance Dog who supports them with their physical and psychosocial disabilities and the trauma from multiple instances of abuse throughout their teens and 20’s. Passionate to raise awareness, create positive change in the health system and promote authentic representation of people with disability in performing arts, Jess has been able to use their lived experience to be a voice for their community.
Their experiences have been given meaning through their work and achievements within health and acting, where they have been able to work with key stakeholders in health and government to improve access, navigation and support for people with disabilities.
On a society level, Jess strives to advocate for accessibility, safety and respect for those within the disability, neurodiverse, LQBTQIA+ and gender diverse communities.
Jess has incredibly diverse lived experiences and is available to speak, engage and consult on a range of additional topics including; being a victim survivor of abuse, experiencing homelessness, ongoing abuse, neglect and manipulation from primary support systems, attempting to access housing that is safe, accessible and available in a timeframe that wasn’t (10+ years), the effects of being an NDIS participant and having the Disability Support Pension as a primary income .
They hope that sharing their experiences will help with the disassembling of ableist constructs and lead to a wider understanding of how intersectionality affects the care and experiences of those who access healthcare and support systems.
ACHIEVEMENTS
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Extensive experience as a writer across multiple publications
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Chief Investigator on MRFF Consumer-Led Grant application 2022
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Peer Advocate for CoHealth Diversexy Program (creation and presentation) 2020-current
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Co-Lead creation and implementation of CoHealth Disability Inclusion Plan 2020-2024
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Performer in Award-winning show "Qualia" at Melbourne Fringe Festival 2019 (with ongoing projects)
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Disability Consumer Consultant for the Department of Health and Human Services Victoria in the creation of 'My Allied Health Space'
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National Disability Services peer advocate for ProjectABLE and Practice Support Network member
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Focus group participant and content creator for 'Giving it a Go' app and website (resource for people living with musculoskeletal conditions)
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Engaged as a consumer representative/lived experience consultant for government, organisation and research-led mental health and disability projects
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Blogger for Invacare Australia and New Zealand
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Multiple media interviews live, in print and radio including The Age, ABC, Triple J, Life Matters and more
LINKS
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'Choice and control in independent assessments: activist Jess Cochran on NDIS changes' - Hireup Opinion Piece by Jess
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'Adjusting to disability later in life' - ABC Article & Triple J Breakfast
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'The Significance of the Emergence of Adaptive Fashion' - Jess writes for Christina Stephens
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'Best Friends - In Sickness, Surgery And Everything In Between' - Jess co-writes with Ferris Knight for Invacare
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ABC National News 'Advocates continue to call for free rapid tests for people with disability' - Jess Cochran feature
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'Let’s talk about doctor shopping, drug seeking and other labels' - Hireup Opinion Piece by Jess
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'Model Behaviour - Jess Cochran on Tube Feeding' - Jess 'THE BLEND' Feature pp. 124-127
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'Seclusion in mental health units on the rise' - interview with The Age
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'The right to sex when you live with disability' - interview on Life Matters ABC Radio
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'Long waits and heartache for NDIS users' - Herald Sun Features Jess
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'NDIS funding hole leaves desperate families waiting years for help' - 9 News Features Jess
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'Should we be using identity-first or person-first language?' - Collaborative piece co-written by Jess for Hireup
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'When Man's Best Friend is also their Lifeline' - Invacare article by Jess
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'Giving victims a voice: the choir using song to spread their message of resilience and hope to family violence survivors' - The Australian Women's Weekly feature Jess
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'#MyDisabledLifeIsWorthy and it always will be' - Jess writes for Hireup
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'Music as therapy' - Invacare article by Jess
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'Music as therapy - an update' - Invacare article by Jess
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'What Living With A Disability Has Taught Me About Self Care And Connecting During Isolation'. - Invacare article by Jess
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'Clinical Vs Personal Touch: Why Both Are Vital In Clinical Practice To Those With A Disability' - Invacare article by Jess
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'Perspectives on Living with Tube Feeding' - Jess on Panel for Feeding Tube Awareness Week
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'Telehealth, The Silver Lining In 2020' - Jess writes for Invacare
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'The Fall' - Jess writes for Invacare
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'A Letter To My Younger Self' - Jess writes for Invacare
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'A Celebration Of Invacare’s Community Bloggers' - Jess featured and collaboration for Invacare
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“Removing telehealth will remove access to care when I need it.” - Jess quoted in Hireup article
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'How to Design Cities for Everyone' - Matters Journal article featuring Jess Cochran
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'MePACS - Supporting people with disability to live confidently' - Link Magazine page 45 feature of Jess
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'Inspiring Stories: Jessica Cochran' - Get Back Up feature Jess
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'Personal journey revealed' - Star Weekly Feature of Jess
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'ACNH Fringe with Jess Cochran' - Melbourne Fringe Livestream feature with Jess
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'Supporting People with Disability to live confidently with MePACS' - MePACS Feature
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'Qualia' - original film
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'Qualia' - Science Gallery Performance 2022
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'Talk-ist | You did what? | Jess Cochran' - Bent TV Interviews Jess
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Jess Cochran - Personal Website
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